Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 3/1/13

Written by Katie. Posted in Five For Friday

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1.  Medical Stuff:

  • 3 Days of Home Rehab.  Treadmill, light weights, exercises, glute fires, balance work, light stretching…the usual.
  • I had an OMM appointment.  We worked on my hip, ribs, and my doctor did some cranial-sacral work (one of my loves).
  • I had another prolotherapy treatment on Friday.  More to come on that.

2.  Max finished filming the feature on Thursday.  Want to know a secret?  I got to see it early on Friday.  Let me just say that it was a very STRANGE experience watching myself.  I tried not to be too critical of myself but honestly it was hard…I watched it twice and ended up with tears in my eyes both times.  Max spent hours and hours filming and working on it, and you can tell down to each detail that he used, that he poured everything he had into telling the story.  I hope when you get a chance to watch, you will appreciate how beautifully done it is.  It will air tomorrow.  More details to come…

Right after we finished. It's a wrap!

Right after we finished. It’s a wrap!

3.  Thursday was Rare Disease Day.  I think it is important to mention that while EDS and Dysautonomia are not necessarily rare, they are rarely diagnosed.  I went through the experience of the frustration, devastation, and feelings of hopelessness of seeing more than 20 doctors who had no clue what was wrong with me.  We obviously need more education, more awareness, and more research.  I feel strongly that this should not only begin with you and I, but with medical professionals, and in medical school, physical therapy school, nursing school, and so on…This is something through the Life as a Zebra Foundation that I hope to focus on more and more.  I have done one talk with a group of physical therapists, and one talk with a few doctors, and I am hoping for many more opportunities to speak to other medical professionals in the community.

hope rare disease day

4.  Here is my newest zebra addition all the way from Indonesia! Isn’t she cute?  Thank you Allie and Gabe!


Any name ideas for her?

5.  On the teaching front, it feels that my new teaching partner, Sarah and I are falling into a comfortable routine, as we learn more and more about each other, both personally and as teachers.  Also, March is a super busy month at school.  We have parent-teacher conferences, and it’s “March is Reading Month!”  We are hoping to get a “VIP reader” into our classroom each day for the month of March.  I’m excited that our calendar is beginning to fill up.

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