Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 5/2/15

Written by Katie. Posted in Ehlers-Danlos Awareness, Five For Friday

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Happy May! Happy EDS Awareness Month!

1. Medical Stuff:

  • 1 Day of PT.
  • 2 Days of Home Rehab with cardio done OUTSIDE with warmer temps and sunshine.
  • I saw my shrink on Thursday. It had been a month. It was time.

2. We had a duck move in this week. She moved in last Saturday and has made herself comfortable. We have since named her Phyllis…and have found the MANY eggs she has laid. By the looks of it, Phyllis isn’t going anywhere anytime soon. Sigh. I think she thinks our house is her house now. Case in point: The other day when I was trying to back out of my driveway, Phyllis got up, walked behind my car, and just stood there. I ended up being late for my appointment.

3. May. It is PACKED. So many end of the school-year events, family events, zebra events. I am going to do my best to breathe in, breathe out. Politely say no when it is necessary for my well-being. Pace myself. Listen to my body. And hold on tight. When I forget, I will go back to this post and read my words again…and again.

4. I did an interview yesterday with WILX News 10 about the first annual Y-PIF (Youth Passing Kindness Forward) award that 11 year-olds, Isabelle and Zoe will receive on Sunday from the non-profit, ePIFanyNowâ„¢! These amazing young ladies organized the Zebra Zoom 5k that raised over $1,000 for Life as a Zebra! (www.epifanynow.org). So proud of these girls, and very excited to see them get recognized TOMORROW! I feel like a proud zebra Mama!

5. A couple of Ehlers Danlos Awareness Facts:

*Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. (EDNF.org)

* Clinical manifestations of EDS are most often joint and skin related and may include: joint hypermobility; loose/unstable joints prone to dislocations and/or subluxations; joint pain; early onset of osteoarthritis, fragile skin that tears or bruises easily, slow and poor wound healing and much more. (EDNF.org)

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