Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘2014 Benefit Concert’

Five For Friday 2/14/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab.
  • I was supposed to have PT on Tuesday but when I showed up, I was told to go home due to having a fever and a sinus infection.
  • I saw Larry on Tuesday before my scheduled therapy appointment. I had been feeling yucky so when the nurse told me I had a fever, I was not surprised. In addition to having the usual cranial and back OMM, Larry also wrote me a prescription to take care of my sinus infection. I am happy to say I am feeling much, MUCH better now.

We Have Launched!

Written by Katie. Posted in Foundation, Fundraisers, Invisible Illness, Music

Dear Family, Friends, Supporters, and Fellow Zebras,

Finally!

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 3rd Annual, “An Evening with Chris Trapper and Tony Lucca to Benefit Invisible Illness Awareness and Research.”

There have been many meetings so far.  So many triumphs.  So many acts of kindness and generosity.  So many emails.  And yes, even a few frustrations and tears along the way.  I have learned that just goes with the territory.

Two years ago, the dream was born for Allie and me. 

Five For Friday 2/7/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • All PT was on my own this week.
  • 3 Days of Home Rehab. I hate side planks. Just putting that out there.
  • I had my annual pulmonary function testing done this week. My test results showed all was clear.

Five For Friday 2/1/14

Written by Katie. Posted in Five For Friday

February! Whoa!

1. Medical Stuff:

  • This was one of those weeks I felt like I lived at the doctor.
  • 1 Day of PT. Planks, planks, and more planks.
  • 2 Days of Home Rehab. I upped my treadmill incline this week.
  • I saw my psychiatrist on Tuesday. In 15 years, I can honestly say I have always left his office able to breathe so much better. Tuesday was no different. I told him he is never, ever allowed to retire. We changed my meds a bit, and I will be seeing him bi-weekly for the time being. I am always reminded after those appointments that working on my mental health is just as important as working on my physical health.

Five For Friday 1/10/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Snowmageddon and the Polar Vortex cancelled PT.
  • I got in 3 days of Home Rehab.
  • I had prolotherapy Friday morning. (Post to come).
  • I saw the gyno Friday afternoon and scared the nurses because my heart rate was over 200 sitting. I am wondering if it was a response to being in pain from the prolo? Right now, I still have quite a bit of pain, but my heart rate is 70. Having POTS is so strange. You never know what your body is going to do. SIDENOTE: Remind me not to schedule other appointments on prolo days. Not sure what I was thinking on that one…