Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Chris Trapper’

My Top 20 for Planning an Event

Written by Katie. Posted in Fundraisers, Memorable Experiences

So needless to say, I learned a LOT from planning “An Evening With Chris Trapper To Benefit Invisible Illnesses.” These “lessons” will definitely come in handy as we begin planning the second annual.

Here’s my Top 20:

1. Get a venue secured first, and put it in writing that it is secured. Otherwise you will be scrambling, panicking, and using up all your cell phone minutes trying to find a new venue, because the other one fell through. (Thank you Lou and Harry’s!)

Five For Friday 4/27/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 2 Days of PT: 1 strengthening, 1 Graston’s.
  • I had an OMM appointment.  Usually I see my doc every other week, but it had been 5 weeks.  Immediately upon examination, her eyes got big and she could not believe how outta whack my body was.  The highlight was when she said, “Whoa! You have some party going on in your pelvis.”  Needless to say, she fixed my “party.”
  • No home rehab.  I have been letting fatigue win, which does not make me happy.  I am vowing to you all (to hold myself accountable) that I will get back on track next week.

The \”Speeches\”

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Favorites, Fundraisers, POTS Awareness

For documentation sake, here are Allie and my speeches from “An Evening with Chris Trapper to Benefit Invisible Illnesses,” which was held on April 14th at Lou and Harry’s Sports Bar and Grill.

Katie’s Speech:

“Starting to feel better, so bring on the weather I feel I’ve prepared for anything…

We are the ones who are never afraid, We need no rehearsal to dance. We’re well aware this may be our last chance,

So bring on the avalanche.”

 That was an excerpt from one of Chris’s songs, “Avalanche.”  For the last two years I have been learning how to face my Avalanche.  And you know what? The fact that I am able to stand on my two feet in front of you tonight instead of in my wheelchair, is one of the reasons for me to continue to fight to face my Avalanche.

Five For Friday +5 4/21/12

Written by Katie. Posted in Five For Friday

Hello, blog.  Remember me?  It’s Katie.  I have missed you so.

I cannot believe that I have not posted anything since April 8.  That is a record.  It is definitely time for me to catch up on some writing therapy.

I am pretty sad to say that I missed my first “Five For Friday” since I started my blog a year and a half ago 🙁  I am trying to be kind to myself but it irks me and my OCD personality.

So, I am going to do a “+5” on this one to try to catch myself, and all of you up.