Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Dr. Grubb’

POTS in Art?

Written by Katie. Posted in POTS Appointments, POTS Awareness

"The Doctor and his Patient" by Jan Steen

I found it!  Ever since I saw Dr. Grubb last April, I have been searching for this painting.  Dr. Grubb had showed me this painting to illustrate how he believes this patient could be a patient with EDS type 3 and POTS.  This painting is from the Dutch realism period, and was painted by Jan Steen in the 1600’s.  The Dutch Realism period was a period when artists began to paint real life…even sick people. 

POTS in Toledo Round 2

Written by Katie. Posted in POTS Appointments

Last Monday, Brad and I traveled to Toledo to see the infamous Dr. Grubb.  When I was first diagnosed with POTS, I researched Dysautonomia like crazy.  Dr. Grubb’s name kept coming up over and over again.  From there, I read many of his research papers about POTS and other types of Dysautonomia. 

I made it my mission to see him after I was diagnosed, so I called his office back in November, and the very nice nurse explained that I would have to wait more than a year for an appointment.  However, she explained that I could see the NP, Beverly, in about 4-6 months.  I told her I was totally fine with that.  Therefore, at the beginning of December I faxed the office all of my test results and diagnosis paperwork.  In March, I was called to set up my first appointment with Bev for April.  On April 20th, I saw Bev for the first time. 

Five For Friday 7/15/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • I had my follow up POTS appointment with Dr. Grubb in Toledo.  I need a chunk of time (as well as some time to really process the info and my emotions) to post about the appointment.  I will get to it as soon as I can find a good amount of time + a good amount of energy.
  • 1 Day of PT
  • 2 Days of Home Rehab
  • I’ve needed a new neck this week!  Anyone have one they want to give me?