Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Dr. Grubb’

Five For Friday 3/18/11

Written by Katie. Posted in Five For Friday

 

1.  Medical Stuff:
  • 2 Days of PT-Did regular circuit strengthening.  My PT also put new foot lifts in my shoes to give me better support. 
  • 2 Days of Home Rehab.
  • I got into Dr. Grubb’s Nurse Practitioner!  I had sent my info into their office in December and they called me Tuesday to schedule an appointment.  My appointment is in Toledo on April 20th, to get another expert’s opinion on POTS and my treatment.  It takes a year or more to get into Dr. Grubb himself so I jumped at the chance to see the NP since I was told they work very closely together.  I was also told to expect at least 2 hours for my appointment because she will go over EVERYTHING.  At a couple of my EDS appointments in the past year, I was told that Dr. Grubb probably has the best understanding about how POTS plays into EDS so that is promising to me.
  • My ribs hurt!  It’s been pretty frustrating.  I go back Monday to get my third round of prolotherapy (I cannot believe it’s already been 3 weeks!) so I will definitely be bringing up my ribs because they are worrying me!
  • I had to go to Sparrow Medical Supply to get a new pair of compression stockings since one of my stockings ripped in half when I was taking it off.  ?Oops.
RIP my first pair of compression stockings.  You were good to me.

POTS in the News

Written by Katie. Posted in POTS Awareness

Thanks Uncle Steve for letting me know about this article.  It is crazy that since I have been diagnosed, I have actually read two articles in the news about girls with POTS.  This is encouraging to me because hopefully the more POTS is out there in the media, the more (hopefully) will be learned about POTS, and therefore researched about this little known disorder.