Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Dysautonomia’

Five For Friday 10/3/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 1 Day of Home Rehab…on the brand new, beautiful, FIXED treadmill.
  • I had to take Tuesday off from school. I wasn’t sleeping enough, my heart rate was too high, and I started to notice more blood pooling than usual, which are usually red flags that I need to slow down and rest. Luckily, I slept three hours that afternoon, and did okay getting through the rest of the week.

Five For Friday 4/11/14

Written by Katie. Posted in Five For Friday

2 weeks behind! Life got super crazy and I am now finally catching my breath and feeling human again…

1. Medical Stuff:

  • 1 Day of PT. I needed a lot of cranial work.
  • 1 Day of Home Rehab.
  • VERY little sleep. At times, it was a big struggle with tears, and yucky-ness, but I made it through.

We Have Launched!

Written by Katie. Posted in Foundation, Fundraisers, Invisible Illness, Music

Dear Family, Friends, Supporters, and Fellow Zebras,

Finally!

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 3rd Annual, “An Evening with Chris Trapper and Tony Lucca to Benefit Invisible Illness Awareness and Research.”

There have been many meetings so far.  So many triumphs.  So many acts of kindness and generosity.  So many emails.  And yes, even a few frustrations and tears along the way.  I have learned that just goes with the territory.

Two years ago, the dream was born for Allie and me. 

Benefit Concert Speeches: 2013

Written by Katie. Posted in Chronic Illness, Ehlers-Danlos Awareness, Family, Favorites, Fundraisers, Invisible Illness, Memorable Experiences, POTS Awareness, Writing

For documentation sake, the following are Allie and my speeches from the Life as a Zebra Foundation’s second annual, “An Evening With Chris Trapper and opener, Joshua Davis Trio, to Benefit Invisible Illness Research” held at the Kellogg Hotel and Conference Center on April 13, 2013.