Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Dysautonomia’

\”Stable:\” POTS in Toledo

Written by Katie. Posted in POTS Appointments, POTS Awareness

There’s always an air of excitement when it is time for me to return to Toledo to either see Bev or Dr. Grubb.  I think it’s because it took so long for me to get into them, knowing that they are two of the best Dysautonomia experts in the world.  Call it hope, call it an understanding, call it an appreciation for doctors who care and “get it”…call it what you will, but it never seems like a chore to travel to Toledo to see these two incredible doctors and people. 

The 2nd Annual Invisible Illness Benefit Concert Launch Day!

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Fundraisers, Invisible Illness, Memorable Experiences, Music, POTS Awareness, Thankful

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”

Five For Friday 2/1/13

Written by Katie. Posted in Five For Friday

Happy February, friends!

1.  Medical Stuff:

  • 2 Days of Home Rehab.  I should have worked another day in there.
  • My OMM doctor had to cancel my Tuesday appointment due to sickness.  I am rescheduled for later in February.  Right now, my thoracic is in major need of some gentle manipulative medicine.  While I wait, I will rely on heat, strengthening, foam rollers, and my physical therapist.

Five For Friday 5/4/12

Written by Katie. Posted in Ehlers-Danlos Awareness, Five For Friday

1. Medical Stuff:

  • 1 Day of PT.  I asked Katie to kick my butt and she delivered.  Sometimes I am not sure if the Reformer is a beautiful thing or an evil thing. The jury is still out.
  • 2 Days of Home Rehab.  I’m happy to report that I did a much better job this week staying on top of doing my cardio and strengthening.  On to next week.
  • No doctor’s appointments!

2.  Last Saturday,