Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Power Potion

Written by Katie. Posted in Random

Most mornings I make this smoothy for breakfast.  I have come to really like it.  This drink was recommended to me by the doctor who finally solved the mystery and realized I had EDS.  He named it, “Dr. Joe’s Magic Potion.”  He explained that it has many “power foods” that can help bring down inflammation in the body.  He is a pain management doc (physiatrist), and told me that he has had luck helping some people’s pain with this drink over regular pain meds. 

I have always had a hard time getting in my daily fruits and veggies, so incorporating this into my diet has helped.  Plus I think out of all the ingredients, the ginger root and the fish oil are probably the most beneficial ingredients for me.  I have felt at times that the ginger root has helped calm some of my muscle pain and GI issues.  The fish oil helps with circulation and is also another powerful anti-inflammatory agent.

Getting It Out

Written by Katie. Posted in Challenges

I got a text from Allie a little while ago that said, “Where’s an update slacker?”  My response?  “You don’t want an update.  It’s been a rough few days.” 


Then I thought if I only blog when things are good, then I am not being totally real about all of this, am I?  And maybe being “real” will show other EDS’rs or POTSIES that they are allowed to be human too.

So I’ll get right to the point. 

EDS Inservice

Written by Katie. Posted in Ehlers-Danlos Awareness

 

Last Tuesday, was the Ehlers Danlos Inservice that the PT student who I have been working closely with put together for all of the other therapists.  She had asked me to come to show the Beighton Scale (one of the ways I was diagnosed), and to help answer questions and provide information from a patient’s perspective.  ?I was so proud of her~She put so much work into the presentation.  It is always surprising to me how little is known about EDS in the medical world.  This is why I was extremely THANKFUL to this student who took the time to educate the therapists, to help “make the invisible, visible,” and hopefully help other patients get to a proper diagnosis in a much more timely fashion than it took me. 
The slides below are from her PowerPoint.  Let me be clear~this is NOT my presentation.  I did not put together these slides.  The PT student did, and she was nice enough to share these and all of her other resources with me.