I know, I know, I am late…My excuse is I have been in Georgia, got home yesterday, and had enough energy left to watch the Modern Family finale, and pass out on the couch.  After a full night’s sleep, I am moving slow, but back in action.

1.  Medical Stuff:

• 1 day of PT
• 2 Days of Home Rehab
• Monthly appointment with Larry.
• Was given a prescription for waist high compression stockings.

1.  Medical Stuff:

• 1 day of PT
• 3 days of Home Rehab
• GI follow-up at U of M.  I am going to try and up the Domperidone to see if my symptoms improve.
• Appointment with Dr. Rosen.  Theme: Adapting my life
• Started Midodrine for POTS.

I have had some questions about what I do on my home rehab days.  As I have gotten stronger, I have been able to add more exercises and a few more reps.  My PT has discussed with me that less weight, and higher reps, help create energy in the tissue. 

I have learned on my own that one of the most important parts of rehabbing with EDS (for me) is making sure I work all areas of my body-arms, core, back, legs, neck…If I only work one area, the other areas start to feel like they are coming “unglued.”  I have also learned that rehab for me must remain very consistent.  Otherwise, within a few days of not rehabbing, I feel a lot more pain, and like my body is starting to fall apart.     

Having one of those days…

Trying to keep myself from falling into the “feeling sorry for myself” mode.

I’ve been really struggling the last few days with the inconsistencies of these diseases.  Someone asked me if the pain was the hardest thing to deal with.  I told them the pain was nothing compared to the roller coaster of not knowing how I will feel the next day or even the next hour.  I crave consistency and routine; two things that are pretty nonexistent for me right now with EDS and POTS.