Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 6/24/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Elliptical, scap fires, ultrasound, stim, heat, and OMM. The works!
  • No Home Rehab. I’ve been trying my best to rest this rib flare.
  • 1 OMM Appointment. A lot of time was spent trying to get everything back in place. GENTLY.
  • I saw Dr. Cantieri at the last minute on Monday for prolotherapy on my back and ribs. Thank god for that man for getting me in at the last minute, and thank god for my father who drove me back and forth on a whim. After 120ish shots, I’m still pretty sore, but I’m doing my best to rest and listen to doctor’s orders!

Five For Friday 6/17/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 1 Day of Home Rehab.
  • 1 Cancelled Larry appt. (Waaaaa)
  • My rib pain has sucked this week! Trying to stay positive, but it’s not the most fun thing in the world…I bought a back brace at PT so I’m hoping it helps!

Five For Friday 5/20/16

Written by Katie. Posted in Five For Friday

WHAT. A. WEEK!

1. Medical Stuff:

  • I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
  • 2 Days of Home Rehab.
  • I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
  • I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

Five For Friday 5/6/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 2 Days of Home Rehab.
  • I saw my shrink on Tuesday. Mental health…just as important as physical health!
  • I saw one of my OMM docs on Thursday. My left side was way out of whack. Thankful for gentle manipulative medicine to get me back in place.
  • I’ve been struggling with a Gastroparesis flare this week. Hoping it will pass much sooner than later.

Five For Friday 1/22/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Gentle neck manipulations and a LOT of cardio. I also started on the weight machines this week.
  • 2 Days of Home Rehab. I rocked my cardio old school to Bell Biv Devoe. No judging.
  • Sunday, I decided it would be a good idea to run up my parent’s driveway and into their house from my car. However, my body had another idea when I slipped on a patch of ice and landed on my face. Incredibly, I only broke my pinky and scraped my knee. It happened so fast, I have no clue how I managed that, but I all I know is that it could have been MUCH worse.