Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Fundraisers’

Benefit Concert Speeches: 2013

Written by Katie. Posted in Chronic Illness, Ehlers-Danlos Awareness, Family, Favorites, Fundraisers, Invisible Illness, Memorable Experiences, POTS Awareness, Writing

For documentation sake, the following are Allie and my speeches from the Life as a Zebra Foundation’s second annual, “An Evening With Chris Trapper and opener, Joshua Davis Trio, to Benefit Invisible Illness Research” held at the Kellogg Hotel and Conference Center on April 13, 2013.

Five For Friday 5/17/13

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 1 Day of PT in their new facility.  It’s beautiful.  I never thought I would say this, but I hope they move the torture chamber Reformer in soon.
  • 2 Days of Home Rehab.
  • I had my monthly doctor appointment with Larry.  He did the usual OMM on me.  I may be crazy but I always notice a relationship between less POTS symptoms after gentle cranial work.  Love it.

Five For Friday 4/12/13 & 4/19/13

Written by Katie. Posted in Five For Friday, Fundraisers

What a difference a week makes.

Last Saturday at this time, I was in a cocktail dress, with my hair and makeup done, surrounded by so much love and support, hosting Life as a Zebra Foundation’s second annual benefit concert with my sister.

This Saturday, I have just woken up, I am sitting with heating pads on my back and neck, and I am in my sweats, blogging and watching Knocked Up.

I am not complaining.  Both are spectacular feelings. 

Five For Friday 3/31/13 & 4/6/13: Benefit Concert Edition

Written by Katie. Posted in Five For Friday, Fundraisers

Oh hey there, blog. Remember me?  Sorry for the neglect…Life is crazy.  I am currently living in benefit planning land.  It’s fabulous. Interesting. Intense. A blessing. Stressful. And at times, it can be completely insane. But instead of making excuses, I’ll get right to the last couple of weeks…This will be a combined edition.  The top 10 of the last two weeks.

1. Medical Stuff:

  • 2 sessions of Physical Therapy, with lectures on pacing, along with all of my exercises.  It is a beautiful thing when your therapist looks at you and says, “I know exactly what you need today. Sit down and listen.”
  • One trip to urgent care due to POTS, stress, exhaustion, and dehydration. (Cue the physical therapy lectures).
  • 5 Home Rehab sessions.
  • One telephone conversation with Dr. Larry about what I need to do for me to survive.