1. Medical Stuff:

• 4 Days of Home Rehab.  Since I am still off from PT for a little longer, I am much more limited with equipment, so therapy has consisted of a lot of treadmill or outside walking with steep inclines, a lot of joint strengthening exercises (supermans, glute fires, squats, etc.), and a lot of light weight lifting for my upper body.
• Zero doctors appointments this week AND next week (so I can get used to school).  Amazing.

I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine. 

What a difference a week makes.

Last Saturday at this time, I was in a cocktail dress, with my hair and makeup done, surrounded by so much love and support, hosting Life as a Zebra Foundation’s second annual benefit concert with my sister.

This Saturday, I have just woken up, I am sitting with heating pads on my back and neck, and I am in my sweats, blogging and watching Knocked Up.

I am not complaining.  Both are spectacular feelings. 

Recently I’ve had a few people ask questions about the doctors and therapists I currently see to keep my POTS and EDS manageable.  Whenever I type a list like this, I thank my lucky stars

1.  Medical Stuff:

• 2 days of Home Rehab.
• 1 Day of Physical Therapy.  I had my first day back after two months off.  Basically this appointment was focused on setting goals.  One goal that my PT and I made together is to be able to stand in place for a longer amount of time.  Standing in place for more than a couple minutes is one of the hardest things for me to do.
• I had quite the POTSy week.  Maybe I am trying to do too much?  That’s what my body seems to be telling me.