Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Hope’

Five For Friday 5/27/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Great cardio session!
  • 2 Days of Home Rehab.
  • My stomach is working again. It seems that the bad Gastroparesis flare has passed for now. Fingers crossed it continues to stay away!
  • Bad insomnia week…I feel like a zombie! TGIF!

Hope Comes in Many Forms

Written by Katie. Posted in Foundation, Fundraisers, Invisible Illness, Zebras

Live. Love. Michigan.

A company I had not heard of until a few weeks ago, when my friend, Sara, posted a link to my Facebook wall asking if I wanted to vote. I was confused so I read further and saw that this company was asking for people to nominate their favorite Michigan non-profit for their Hold on to Hope Campaign.

Hard is What Makes it Great

Written by Katie. Posted in Challenges, Ehlers-Danlos Appointments, Favorites, Inspiration, Memorable Experiences, Thankful

If you have been following, you know I had my chance to cross off one of my goals for the year last week, which was to work out with the incredible Dr. Lavallee.   Back in January I had asked him at my yearly EDS check-up if he would ever be willing to work out with me.  He laughed a little, I think taken by surprise, and said, “But I don’t think you need to learn many of the exercises I do…I think you are doing well managing your EDS so far on your own. “

By the Skin of my Teeth

Written by Katie. Posted in Challenges, Memorable Experiences, Thankful

I apologize for my post, “I am Trying.”  I realize that it was not fair of me to post such a vague entry, knowing full well that so many of my family and friends read.  I was so upset the other night, and I was not thinking clearly.  I had let my emotional brain overtake my rational brain.

Anyways, here’s the scoop, that sent me into a 2 day frenzy.