Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Infusions’

Five For Friday 10/21/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Back to the eye doctor. Back on antibiotic drops. What the heck? Why won’t this infection go AWAY?
  • 1 Day of PT. Strengthening, stim, and OMM.
  • 2 Days of Home Rehab.
  • 1 Infusion. Thank goodness I have access to this treatment for POTS.

Five For Friday 9/2/16

Written by Katie. Posted in Five For Friday

September! And you know what that means…this girl goes back to work!

1. Medical Stuff:

  • 1 Day of PT. I worked HARD. Last PT before I have to start going from school again.
  • 2 Days of Home Rehab.
  • 1 infusion. 2 bags of fluid. I like to call it my “back to school boost.”

Five For Friday 7/1/16

Written by Katie. Posted in Five For Friday

July! This summer is FLYING! Slow down please!

1. Medical Stuff:

  • No PT, No Home Rehab.
  • 1 Infusion on Sunday.
  • Still dealing with a rib/thoracic flare. A lot of back brace and ace wrap wearing going on…Thank God for ice, heat, and foam rollers too.

Five For Friday 5/20/16

Written by Katie. Posted in Five For Friday

WHAT. A. WEEK!

1. Medical Stuff:

  • I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
  • 2 Days of Home Rehab.
  • I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
  • I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

Five For Friday 4/22/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 2 Days of Home Rehab.
  • I had an infusion on Wednesday. I am starting to notice when I need to go. I begin to feel more POTS symptoms, and more fatigue. I am so grateful I am able to get fluids with ease. It really does feel like it helps reset my system.