Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Invisible Illness Awareness Week’

Five For Friday 5/20/16

Written by Katie. Posted in Five For Friday

WHAT. A. WEEK!

1. Medical Stuff:

  • I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
  • 2 Days of Home Rehab.
  • I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
  • I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

Five For Friday 4/1/16

Written by Katie. Posted in Five For Friday

What. A. Week. I felt like a hamster on a wheel for most of it. Whew.

1. Medical Stuff:

  • 1 Day of Home Rehab. That is it for the week. Fail.
  • 1 Infusion at Sparrow. So far, so good. It has definitely been worth the three hours of sitting for each one.

Five For Friday 5/22/15

Written by Katie. Posted in Five For Friday

What. A. Week. I feel like I am now just catching my breath…So much wonderful zebra-ing this week. It was all so worth it, but now it is recovery time this weekend. I’m not gonna lie…this girl is pretty exhausted.

1. Medical Stuff:

  • 1 Day of PT.
  • 2 Days of Home Rehab.
  • Zero doctors!
  • Not a lot of sleep.