Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Life as a Zebra Foundation’

Five For Friday 7/8/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab.
  • I saw Dr. Klauer at the TMJ & Sleep Therapy Center on Friday in Mishawaka to get my mouth appliance adjusted and loosened.
  • I finished Twistars camp on Thursday so I had Friday to allow my body to die. I barely moved all day, except to change my ice or heat. It was a MUCH needed recovery day.

Five For Friday 5/20/16

Written by Katie. Posted in Five For Friday

WHAT. A. WEEK!

1. Medical Stuff:

  • I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
  • 2 Days of Home Rehab.
  • I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
  • I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

Five For Friday 5/6/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 2 Days of Home Rehab.
  • I saw my shrink on Tuesday. Mental health…just as important as physical health!
  • I saw one of my OMM docs on Thursday. My left side was way out of whack. Thankful for gentle manipulative medicine to get me back in place.
  • I’ve been struggling with a Gastroparesis flare this week. Hoping it will pass much sooner than later.