Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Me’

Right Now…

Written by Katie. Posted in About Me, Questions, Random

1) Reading: Emails! Other blogs, just started the book, Lean In.

2) Top three songs: Hmm, So many right now: “Just Like Heaven” (On a Cure Kick…Allie told me this made me old), “Blurred Lines” (Can’t help it. Makes my booty shake…does saying “booty” also make me old?), & “These are the Days” since I broke down and cried when I heard it driving home from school this week. It was such a fitting song to end the year.

Overwhelmed

Written by Katie. Posted in About Me, Challenges, Chronic Illness

Send tickets to sponsors.  Deposit sponsor checks.  Send ad reminders.  Constant Contact Email.  Update Foundation Website.  Link Blog to Foundation Site.  Pick up Panopolous Sponsorship on Tuesday.  Follow up on other sponsorships.  Schedule Kellogg Meeting to plan/order food & room design.  Design t-shirts and order. 

The 2nd Annual Invisible Illness Benefit Concert Launch Day!

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Fundraisers, Invisible Illness, Memorable Experiences, Music, POTS Awareness, Thankful

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”