Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Perspective’

Five For Friday 12/13/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab. I upped my incline on the treadmill by two levels this week to try to get more of a burn in my legs. I know that for me, the stronger my legs are, the better I do with both, pain control and POTS sickness. I’ll be back at PT on Monday.
  • I had my December Larry appointment on Tuesday, which included lots of cranial and jaw OMM. One of the residents came in to talk to me first. I could tell I was confusing the poor guy more and more, as I answered his questions. When he left the room to see if Larry was ready, I heard him say to someone, “I have never seen someone like her before. I think I need some help with this patient.” Ha! In my opinion, at least he could admit it, and asked for guidance. I think it would be better if more doctors had the courage to do so.  SIDE NOTE: I have experienced a lot of pain in my life, but jaw OMM has to be up there with the worst. Holy tears in my eyes. It is amazing though how much better I feel afterwards.

Five For Friday 10/11/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • I saw Larry in the office on Tuesday. Usually I see him once a month for his “magic hands” OMM and to make sure everything with my health is being managed like it should be. However, Larry has been in Belgium and the Netherlands for the last month as the team doctor for the US (at gymnastics worlds), so it had been two months since my last appointment. And boy, how I have missed him. We had a great appointment going over everything I’ve been up to (start of school, PT, prolotherapy, doctor changes, etc). He did a lot of jaw and cranial work on me as we talked, also acting as my shrink at times; talking about pacing, priorities, and life in general. That man wears many hats in my life.  The best way to explain how I feel after seeing him is it feels easy to breathe again with peace and clarity. I am so blessed he is my doctor and my friend. I have no idea where I would be without him.

Five For Friday 9/27/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab.
  • 1 Day of PT for filming a Life as a Zebra news story, a workout, and for a stern talking to by my PT about how I have worked too hard not to be pacing myself better when it comes to work and life in general. She is absolutely right. Working on it…
  • Zero doctor’s appointments.