Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Sleep’

Five For Friday 7/25/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab.
  • Lots of DC walking. Does that count as rehab? : ) I have a feeling my therapists would say no…
  • No PT or doctors since I was gone.
  • It was an insomnia week. Hoping to get my sleep back on track ASAP.

Five For Friday 4/18/14

Written by Katie. Posted in Five For Friday

The 3rd annual is in the books! I will need to devote a whole post to the night…and figure out what words I can use to really express the emotions I continue to feel over the incredible generosity, love, and support we have received from so many who have embraced us and our cause. It is hard to put the grandiosity of these emotions into words, but I will try my best…I will try to get to work on that soon. I will also post Allie and my speeches.

1. Medical Stuff:

  • As expected, I became pretty sick after the event. I crashed hard. I had to cancel PT and I only got in one day of home rehab. I am thankfully slowly starting to feel better. But again, I do not want to complain. It was definitely worth the crash…
  • No doctors. This upcoming week, I am back at my intensive doctor and therapy schedule.
  • I’m sleeping a little better now…3:30 am has been my buddy this week so hopefully I will start sleeping through the nights again. Every single symptom is better when I sleep. I’m sure many of you can relate.

Five For Friday 4/11/14

Written by Katie. Posted in Five For Friday

2 weeks behind! Life got super crazy and I am now finally catching my breath and feeling human again…

1. Medical Stuff:

  • 1 Day of PT. I needed a lot of cranial work.
  • 1 Day of Home Rehab.
  • VERY little sleep. At times, it was a big struggle with tears, and yucky-ness, but I made it through.

Five For Friday 1/24/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. My PT has a new student working with her for the next ten weeks so I did a lot of explaining about everything that is EDS and POTS.
  • 2 Days of Home Rehab.
  • I slept better all week. Dear Sleep Gods, please let it continue.
  • I have noticed that this extreme cold we are experiencing has been wreaking some havoc on my joints and circulation. Spring can come anytime…I’d even take 15 degrees at this point.

Five For Friday 1/17/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  •  1 Day of PT. I have new ab and shoulder work to add to my other exercises. It’s good to change it up every once in a while.
  • 1 Day of Home Rehab.
  • I was back to having a lot of POTS and insomnia problems. To be honest, it was a really rough week, with a few bad nights. It may be time to look at a couple of med changes.
  • I saw Larry on Monday for my monthly appointment. He used his “magic fingers” to do cranial and upper back OMM. That man has an amazing gift.