1. Medical Stuff:

• 1 Day of PT. Graston’s Therapy on my hip, quad, and IT band, plus the usual strengthening.
• 2 Days of Home Rehab.
• Gastroparesis flare. Back on Domperidone until it calms down.
• 1 shrink appointment. I accidentally scheduled a half hour instead of an hour. What I learned? I need that hour…: )

1. Medical Stuff:

• No PT. All rehab was on my own this week.
• 3 Days of Home Rehab.
• No doctor’s appointments either. It is a very rare week for me when I have zero therapy or doctor appointments!

1. Medical Stuff:

• 1 Day of HARD PT. Bill likes the tough love when it comes to strengthening. I’m not complaining…
• 2 Days of Home Rehab.
• I saw Larry on Tuesday. We discussed my unintentional weight loss, and that it’s time to call Dr. Grubb and see if it’s a) because of POTS and b) if so, if I need a Beta Blocker med adjustment. Larry also did his usual (magical) OMM on my ribs, upper back and neck.

May! Which means Vasculitis awareness month, Ehlers-Danlos awareness month, and so many more…

1. Medical Stuff:

• 1 Day of PT. I did my strengthening and cardio work, and then we focused a lot on my thoracic junction and lower ribs. Every once in a while, this area flares up and it’s a matter of heat, Biofreeze, OMM, and just riding it out until it passes. Hopefully this will happen sooner than later!
• On a more positive note, I had a glorious week of sleep. Knock on wood that this stretch continues…
• 2 Days of Home Rehab. I had to modify my exercises a bit because of my thoracic pain, but I got both days in!

The 3rd annual is in the books! I will need to devote a whole post to the night…and figure out what words I can use to really express the emotions I continue to feel over the incredible generosity, love, and support we have received from so many who have embraced us and our cause. It is hard to put the grandiosity of these emotions into words, but I will try my best…I will try to get to work on that soon. I will also post Allie and my speeches.

1. Medical Stuff:

• As expected, I became pretty sick after the event. I crashed hard. I had to cancel PT and I only got in one day of home rehab. I am thankfully slowly starting to feel better. But again, I do not want to complain. It was definitely worth the crash…
• No doctors. This upcoming week, I am back at my intensive doctor and therapy schedule.
• I’m sleeping a little better now…3:30 am has been my buddy this week so hopefully I will start sleeping through the nights again. Every single symptom is better when I sleep. I’m sure many of you can relate.