Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for August, 2011

Five For Friday 8/12/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 Days of Home Rehab.  My shoulder did not pop out of socket.  Correlation?  I think so.
  • 1 Day of PT
  • I had a Dr. Rosen appointment.  We talked more about the future and reviewed what is in my control and what is not.  Needed that.
  • I had my monthly appointment with Larry.  We also made a future plan.  I will explain more when I know more facts.
  • I spent a lot of time on record request paperwork this week.

Gorilla Taming

Written by Katie. Posted in Challenges, Ehlers-Danlos Awareness, POTS Awareness

As you can see, I did not write the piece below.  I wanted to post it though, because I find it to be a brilliant description of learning to live life with a chronic illness. 

Each time I read the following piece, I think about my specialists (especially Dr. Grubb and Dr. Lavallee) who are encouraging me to tame my gorilla.