Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

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Five For Friday +2…8/7/11

Written by Katie. Posted in Five For Friday

I’m back! Since I was on vacation all week, this will have to be the vacation edition of Five For Friday.

1.  Medical Stuff:

My PT gave me permission to “just relax and enjoy the week” since I was on vacation.  However, I did do one day of rehab at the beach house, which I quickly figured out was not enough.  After 5 days of no rehab, I began to feel like my joints were coming unglued again.  It is amazing how fast my joints start to go downhill, without doing any strengthening.  At one point, I picked CeCe Baby up, and my shoulder popped out of socket.  Thankfully, my Mom was there to catch her.  Good to know, but also a big reality check that rehab will forever be a part of my life to maintain function.  Needless to say, I will be back at it hardcore tomorrow…

Five For Friday 7/29/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 Days of Home Rehab.
  • 1 Day of PT.  We worked a lot on trying to get my lower scaps to fire properly.
  • Round 7 of prolotherapy on my ribs, neck, and jaw.  Yes, jaw. I return in 6 weeks for round 8.
Not the most flattering picture, but you get the idea.

MIA

Written by Katie. Posted in Random

I am sorry, blog, but I will be pretty neglectful for the next two weeks. I am busy working on giving you a prettier, more informational, more loving home.  Therefore, most of my time this week will be occupied working on this project.  I am also traveling to Mishawaka tomorrow for round 7 of prolotherapy, so I will be out of commission for the next couple of days. 

A Heartfelt Letter Written by a Friend

Written by Katie. Posted in POTS Awareness

I read this letter this morning, which was written by a fellow POTSy friend.  It is beautifully written, honest, and REAL.  I found that it reflected a lot of what I have also tried to express to others this past year about having POTS.  I encourage you to read Susan’s letter if you have the time.  As tears streamed down my face as I read, I just kept thinking, “Thank you, Susan,” for putting into words the emotions that come with redefining life after being diagnosed with this crazy thing called Dysautonomia. 

http://dysautonomiadetour.blogspot.com/2011/07/with-me.html