Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.


Written by Katie. Posted in About Me, Random

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  • I’m back from Philly.  What a fabulous, hot girls trip!  Did I mention hot?  If these are June and early July temps,then I am scared for August.  My POTS is being a trooper, but it definitely does not like these 100 degree days one little bit.  Thank goodness for AC.
  • The highlights of our trip included a visit to the Reading Terminal Market for lunch, some sightseeing, Rita’s!, hanging at the nice, cool splash pad, visiting the most incredible children’s museum I have ever seen (Please Touch Museum), Magic Mike in New Jersey (all I have to say is WOW), watching Katy Rose and Cece become best buds, priceless laughs, and of course watching Jordyn Weiber make the Olympic team.
  • What’s the opposite of a highlight?  Lowlight?  The only lowlight of the trip was spending a total of 22 hours in the car.  My back is still recovering.  
  • Speaking of Jordyn, I can’t begin to explain the pride I feel for Jordyn, my former coaches and gym, who have accomplished so much, including now, being home to an Olympian!  I cannot wait until London.  Once a Twistar, always a Twistar!  
  • We spent 3 hours at Home Depot yesterday.  Fun times.  Especially since the computer that was processing our order crashed 3 times.  With any luck, our kitchen will be finished in 3 weeks.  The plan: new countertops, a new garbage disposal, microwave, range, dishwasher, and sink.  I’ll have to remember to take some before and after pics.
  • I am on a mission to find a swimsuit, weight belt, and goggles.  A week from Friday I will be in Indiana training with the one and only Dr. Lavallee at 5:30 in the morning.  His message to me:  “Start training now, because I go hard.  Oh, and we will have fun too.”  What did I get myself in to?  I just hope I can hang…and I don’t puke.
  • I have been dreaming big about the 2nd annual Invisible Illness Benefit.  I have a few long-shot ideas I’m gonna go for.  You never know if you don’t, right?  (Save the date! Saturday, April 13, 2013!)  On a different note, it dawned on me that I never blogged about the first benefit.  I’ll have to get working on that, since it was one of the most memorable nights of my life.  It must be documented.  
  • Some people have asked how the Senate Bills that I testified against ended up.  I found out from my lawyer that they were not voted on before the committee went on summer recess (which is a good thing).  He told me that when they reconvene, he may need me to testify again in the fall.  He also sent me a few law articles that I am featured in…It’s very interesting to read them since half of the things they have me quoted saying, I never said.  I have learned through this process that it is good to have some thick skin when it comes to the press and politics. 
  • I finished my class with a 4.0.  I’m so glad to have it done, behind me, and that I have zero homework for the rest of the summer.  Woohoo!
  • Here’s some pics I am loving lately:



(This Too Shall Pass)

One of my new idols!

Makes me think. (idlehearts.com)

(This Too Shall Pass)

  • Happy Birthday America!

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