1. The illness(es) I live with are: Ehlers-Danlos Syndrome Type 2/3, Dysautonomia (POTS or Postural Orthostatic Tachycardia Syndrome), and Gastroparesis.

Hello, September!

1. Medical Stuff:

• 2 Days of PT. We are really working on my cervical strength.
• 1 day of Home Rehab.
• A friend told me about how they love their Fisher Wallace Stimulator. Anyone else have any experiences with this, feedback, etc? I’m interested.

Happy May! Happy EDS Awareness Month!

1. Medical Stuff:

• 1 Day of PT.
• 2 Days of Home Rehab with cardio done OUTSIDE with warmer temps and sunshine.
• I saw my shrink on Thursday. It had been a month. It was time.

1. Medical Stuff:

• 1 Day of PT. I was HURTING. I may or may not have cried some. My neck and ribs were really out of whack so my therapist spent the time doing gentle manipulations to try and get them back into place. She also used kinesio tape to tape my neck to take some of the strain off of it.
• 2 Days of Home Rehab. It was a “wear my neck brace while on the treadmill” week. Like I said last week, I think it is time for more prolotherapy.
• I had my echo that Dr. Grubb ordered a month ago. He likes to have EDS patients checked every two years, mainly for mitral valve prolapse. So far, no news. I figure no news is good news.

1. Medical Stuff:

• 1 Day of PT. So many therapy band walks. So many. My butt burnedddddd.
• 2 Days of Home Rehab.
• Larry was back from China (Worlds for gymnastics) so I saw him in the office on Tuesday. My ribs were grateful. A bunch had subluxed, but I left the office moving so much better.