Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.
A few weeks ago, my roommate and teammate from college sent me a Facebook message. At the time she was 9 months pregnant, and still working as a nurse, which makes the fact that she took the time out of her life to write me such a special letter even more meaningful
(Sidenote: She had her baby TODAY! Congrats, Dana and John!)
This survey has been circulating around FB and the Blogosphere…So in honor of promoting Invisible Illness Awareness I, too, am jumping on the bandwagon.
1. The illnesses I live with are: Dysautonomia/POTS (Postural Orthostatic Tachycardia Syndrome) and Ehlers-Danlos Syndrome, Type 2/3.
2. I was diagnosed with it in the year: 2010
It is always comforting to come across suggestions to manage EDS that I have never heard of before.
The second skin suit sounds interesting. Gonna have to research that a little more.
The following article really spurred me to want to write this post.
I was reading it when Brad looked over at me and said, “What are you doing? I didn’t even notice it but I was nodding my head repeatedly as I read the article.
I have been through some crazy times in my short 29 years, but nothing has ever compared to the extreme amount of stress I felt last year when the doctors could not figure out what was wrong with me. When I think back, I wonder how I got through it still standing.
As you can see, I did not write the piece below. I wanted to post it though, because I find it to be a brilliant description of learning to live life with a chronic illness.
Each time I read the following piece, I think about my specialists (especially Dr. Grubb and Dr. Lavallee) who are encouraging me to tame my gorilla.