Last Monday, Brad and I traveled to Toledo to see the infamous Dr. Grubb.  When I was first diagnosed with POTS, I researched Dysautonomia like crazy.  Dr. Grubb’s name kept coming up over and over again.  From there, I read many of his research papers about POTS and other types of Dysautonomia. 

I made it my mission to see him after I was diagnosed, so I called his office back in November, and the very nice nurse explained that I would have to wait more than a year for an appointment.  However, she explained that I could see the NP, Beverly, in about 4-6 months.  I told her I was totally fine with that.  Therefore, at the beginning of December I faxed the office all of my test results and diagnosis paperwork.  In March, I was called to set up my first appointment with Bev for April.  On April 20th, I saw Bev for the first time. 

Last Tuesday marked prolotherapy, round 6.  Since MSU Basketball camps were over, and school was out, Brad was able to take me this time.  We decided to make a “pre-prolo” date out of it. 

Brad’s very favorite beer is Fat Tire.  The problem with this is that it is only sold in 20-some states, and Michigan is not one of them.  Since we have various social events and vacation coming up, Brad decided he wanted to stop and load up on Fat Tire since they sell it in Indiana.  So, as we arrived in Mishawaka we found a “beverage” shop and Brad was able to check his mission off our list. 

Whether or not this will prove factual, as more studies are completed, it is awfully exciting to me.  I have to say that a lot of what she says makes sense.  Thank you, Dr. Driscoll for your hard work and continued advocacy!

1.  Medical Stuff:

• I love finding EDS and POTS success stories.  Here is a link to one of the latest uplifting stories I found…

• Dentist appointment.  No cavities but I am too switch from using regular floss to using the floss picks so I am able to hold them with one hand.  I showed my dentist how I flossed with my hand that doesn’t have feeling and he suggested I switch to the picks so I can use my right hand only.
• 3 days of Home Rehab.
• 1 Day of PT.  On Thursday, I started using this….

My friend Ila, who also has EDS and Dysautonomia recently sent me this blog post she came across to read (If the rest of this post is going to make sense, then you should read the post from the link above first).  I read it a few times, and have thought long and hard about this person’s perspective.  I totally respect what this person has to say and her experiences with both Dysautonomia and EDS.  There are so many things she says that I found myself nodding my head in agreement to.  However, there are a few things from this post, that I would like to just bring a different perspective to.  I feel that we must keep in mind that when someone blogs, it is one person’s perspective, based on their personal and individual experiences.   


I, myself, have to realize that when I post about EDS and POTS, it is from my experiences, and my experiences only; MY symptoms, My struggles, My triumphs, and where I am on the very wide spectrum of both disorders.  I know there are going to be things I say along the way that people disagree with, but when I started this whole blogging thing, I knew that was all part of the “game.”