Dr. Rosen asked me at my last appointment if I wished I was never diagnosed with EDS.  I was already emotional and actually got kind of angry at his question.  Without any hesitation, I snapped back that of course I wish I didn’t have EDS. 

After I left my appointment that day, it was as if Dr. Rosen’s question was haunting me.  I could not get it off of my mind.  I realized as I thought more and more about it that the answer to that question is not as black and white as I thought it was at the time.  I took that question with me to therapy.  I took it with me to Georgia.  I sent my Aunt Mada a Facebook message about it to see what her perspective was since she lives a full and active life with MS.  And then I thought about it some more. 

Here is the tentative schedule for the EDS conference in Baltimore on July 21-23.  Hopefully handouts from sessions will be able to be downloaded and printed, since I do not think it is in the cards for me this year.  It looks like a lot of good info is being presented, and Dr. Grubb is even presenting about POTS.  I will definitely shoot for next year’s conference!

I know this is long, but if you have a chance to watch it, please do.  It just might help someone.  As I watched, I could not get over all of the the similarities between her story and mine.  I laughed when she said “Why not me” because that is what I say too.  Awareness, awareness, awareness.  I can’t say it enough. 

>I’m on the right track, baby, I was born this way…”