Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 4/1/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff: 

  • I graduated from physical therapy and Dr. Rosen.

2.  I broke down and bought a German Shepherd for Brad.

3.  I slept at my house like a big girl when Brad was out of town.

4.  I broke my wrist.

5. I decided I like anchovies and broccoli now.

The "What NOT to Do" Conclusion

Written by Katie. Posted in Challenges, Favorites, Memorable Experiences

Well, I do have to say that persistence does pay off.  I may have overreacted a lot bit, but not knowing to me is the WORST.  If I know I have something, then I can start to deal with it, but I do not do well with the waiting game.

I did not get a call yesterday and stressed, and cried, and prayed, and slept fitfully throughout the night.  I felt like I was back to the summer and the fall, waiting, and waiting for answers.  Thankfully, this morning I was called with the answer I was looking for.

Happiness Is…

Written by Katie. Posted in Ehlers-Danlos Awareness

HOPE!

(click on the word…)

“Never let go of hope.  One day you will see that it all has finally come together.  What you have always wished for has finally come to be.  You will look back and laugh at what has passed and you will ask yourself…’How did I get through all of that?'”
~Author Unknown

Eat Your Heart Out Jane Fonda

Written by Katie. Posted in Physical Therapy

This would be considered a not so great EDS day…Back brace.  Check! To keep my ribs from subluxing, and to try and keep them in place.  They have been giving me real fits lately.  Cervical Collar. Check!  To keep my neck stable so the headaches and neck pain stay at bay.  And as always, my oh so cute compression stockings to help with circulation (POTS) to keep my blood from pooling.