Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Family’

Five For Friday 11/21/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I had a better week. Especially with sleep, and therefore keeping symptoms at bay. Hoping this continues, and feeling grateful for better days.
  • 2 Days of Home Rehab.
  • I saw Larry on Tuesday. He put my ribs back into place and did cranial OMM on me.
  • I saw Dr. Rosen (shrink) after Larry on Tuesday. We discussed my recent med adjustments, and the best ways to cope through this flare. We came up a with a log I will be keeping for now, with information about each day (flares, no flares, where I am at in my cycle, medication info, how I feel, any differences to note, etc…)
  • I spent a lonnnnnggggg, but very worthwhile day in Toledo on Thursday seeing Dr. Grubb for POTS. I will try and blog about my appointment later.

Five For Friday 10/31/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I had to cancel PT on Monday. I felt sick after school, and was worried about driving.
  • 2 Days of Home Rehab.
  • I saw my shrink on Tuesday. It was a needed appointment to talk meds, and figure out how to cope with this latest flare. Love him.
  • I still had a week of struggling with POTS, and therefore sleep. I started a new med, and am really, really, REALLY looking forward to feeling like my body is somewhat cooperating with me again.

Five For Friday 10/17/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. So many therapy band walks. So many. My butt burnedddddd.
  • 2 Days of Home Rehab.
  • Larry was back from China (Worlds for gymnastics) so I saw him in the office on Tuesday. My ribs were grateful. A bunch had subluxed, but I left the office moving so much better.

Five For Friday 10/3/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 1 Day of Home Rehab…on the brand new, beautiful, FIXED treadmill.
  • I had to take Tuesday off from school. I wasn’t sleeping enough, my heart rate was too high, and I started to notice more blood pooling than usual, which are usually red flags that I need to slow down and rest. Luckily, I slept three hours that afternoon, and did okay getting through the rest of the week.