Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Friends’

Five For Friday 4/25/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. That session was no joke. I was feeling well so I asked to be pushed. After the elliptical, we worked my neck, upper back, and core. I was so sore the next day. (The good kind of “sore”).
  • 2 Days of Home Rehab. Treadmill, balance work, light weights, abs, scap and glute fires.
  • I saw Larry for my April appointment. He spent a lot of time doing cranial OMM, and putting my ribs back into place. We also talked about using spray and stretch at therapy to help my neck.
  • I saw my shrink on Thursday for an hour. After 15 years, I love that I still have him to talk to, and clear my head with. Like really, really love it. It’s about maintaining clarity and perspective.

Five For Friday 1/17/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  •  1 Day of PT. I have new ab and shoulder work to add to my other exercises. It’s good to change it up every once in a while.
  • 1 Day of Home Rehab.
  • I was back to having a lot of POTS and insomnia problems. To be honest, it was a really rough week, with a few bad nights. It may be time to look at a couple of med changes.
  • I saw Larry on Monday for my monthly appointment. He used his “magic fingers” to do cranial and upper back OMM. That man has an amazing gift.

Five For Friday 1/3/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. I met another patient with EDS!
  • 1 class of Zumba. An hour and a half of Zumba with Denise is no joke.
  • 1 day of home rehab.
  • I was supposed to go to Mishawaka (IN) to get prolo shots on Thursday but had to cancel because of weather. I’m rescheduled for Friday so fingers crossed that the weather cooperates.

Five For Friday 12/13/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab. I upped my incline on the treadmill by two levels this week to try to get more of a burn in my legs. I know that for me, the stronger my legs are, the better I do with both, pain control and POTS sickness. I’ll be back at PT on Monday.
  • I had my December Larry appointment on Tuesday, which included lots of cranial and jaw OMM. One of the residents came in to talk to me first. I could tell I was confusing the poor guy more and more, as I answered his questions. When he left the room to see if Larry was ready, I heard him say to someone, “I have never seen someone like her before. I think I need some help with this patient.” Ha! In my opinion, at least he could admit it, and asked for guidance. I think it would be better if more doctors had the courage to do so.  SIDE NOTE: I have experienced a lot of pain in my life, but jaw OMM has to be up there with the worst. Holy tears in my eyes. It is amazing though how much better I feel afterwards.

Five For Friday 11/15/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • No PT appointments because of parent-teacher conference nights. I was on my own this week.
  • 3 Days of Home Rehab.
  • My ribs were much more cooperative this week. I didn’t have to resort to ace wrapping them into place to survive. Thank. God.
  • I had an OMM appointment. My doctor commented on how “twitchy” my body felt as she worked on me. She explained that that is what it usually feels like when it is in a flare, which made sense to me since I have been flaring quite a bit lately. She made me promise I would get good rest and take time to recover this weekend.