Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Friends’

Five For Friday 12/12/14

Written by Katie. Posted in Five For Friday

Life has been going at a crazy pace, but I guess, better late than never…

1. Medical Stuff:

  • 1 Day of PT. I have been having increasing headaches, which I suspect is from some neck instability. My PT did a lot of cranial work, which is an incredible help with decreasing the amount and severity of headaches. It may be time for more prolotherapy.
  • 2 Days of Home Rehab.
  • I saw Larry on Friday. The focus of our appointment was my ribs…I had about 5 out so he put them back in place, and also helped me figure out how to schedule the echo that Dr. Grubb ordered for me. It’s that time again. I was told every 2-3 years, an EDS’r needs their heart checked; mainly for mitral valve prolapse.

Five For Friday 11/14/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab. That’s it. It was a pretty bumpy week with POTS.
  • I saw my gynecologist on Friday for my yearly. He doesn’t think my hormones are a major player in my increase in POTS symptoms right now. I know it may be weird to say, but I heart my gyno. He definitely cares about the whole person. That means a lot when you’ve seen many doctors.
  • I have a full week of appointments ahead: Larry, Psych, Dr. Grubb in Toledo. Hoping to get to the bottom of some of the issues I am having so I can get back to feeling my “normal.”

Five For Friday 9/5/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab. Our treadmill is broken so I took my walking outside. Don’t get me wrong. I love being outside, but I honestly miss the treadmill for my cardio time.
  • No doctor’s appointments.
  • So much fatigue. I made it through the week but my body is definitely adjusting. By Friday, I was wishing for a coffee IV.

Five For Friday 6/20/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab: Recumbent Bike, and floor strengthening.
  • Zero doctors and zero physical therapy (my therapist is away right now).
  • I am officially scheduled to see Dr. Lavallee in July! It will be my first time seeing him since he moved from South Bend to York, PA. The road trip will be a lot but I am confident it will be worth it. That man is one of my heroes.

Five For Friday 5/30/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Graston’s Therapy on my hip, quad, and IT band, plus the usual strengthening.
  • 2 Days of Home Rehab.
  • Gastroparesis flare. Back on Domperidone until it calms down.
  • 1 shrink appointment. I accidentally scheduled a half hour instead of an hour. What I learned? I need that hour…: )