Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Life as a Zebra Foundation’

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

Five For Friday 3/16/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. Pretty typical session. Cardio. Strengthening. Circuits. My PT worked my ribs back into place. I ended with heat and stim.
  • 2 Days of Home rehab. Still no treadmill for those following along…they dropped it AGAIN. So, back outside hitting the pavement, a couple of 21 Day Fix workouts, and light weights, and full body strengthening.
  • Every time I get new glasses with a small change in my prescription they make me feel nauseous and carsick. Well, this happened again on Wednesday when I picked up my new reading glasses. I am going to try and wear them in small doses this weekend but my gut says I will most likely be back at their office next week : (

Five For Friday 3/9/18

Written by Katie. Posted in Five For Friday

March Madness continues! And I am not talking about basketball. We just have so much going on this month.

1. Medical Stuff:

  • I had to take Monday off for a specialist appointment.
  • This upcoming week, the treadmill should FINALLY be arriving. I miss it. Didn’t think I would this much.
  • 2 Home Rehab sessions: One, outside hitting the pavement and one Beachbody workout that left my legs feeling like straight up  JELLO.
  • Had to take PT off this week because of Kindergarten Round Up.
  • I had my two year eye checkup on Thursday. Picked out some new glasses, and had to have the whole gamut of testing. Why, you ask? Oh, EDS, you can effect everything. I had one test that pointed to Glaucoma (which can be because of EDS). I had a more advanced test, that turned out okay, but we will be watching it closely from here on out. Never dull ; )

Five For Friday 3/2/18

Written by Katie. Posted in Five For Friday

Whew! I am late…But you know what they say…better late than never ; )

1. Medical Stuff:

  • I haven’t been this “normal person” sick in a long time. NO voice, cough, hard to breathe, back on breathing treatments. It kicked my butt last week! But I am glad to say I am almost back to just my weird issues now! I will say teaching Kindergarten with zero voice is interesting…to say the least.
  • One day of PT. They went easier on me since I sounded like I was a smoker for 50 years. Probably a good thing.
  • One Day of home rehab. I am SO ready to get our new treadmill delivered (after our old one croaked). I miss it!
  • One shrink appointment = 768757575784785 breaths of fresh air. We talked about healing. A Lot.
  • I saw my primary care doc and found out I need to get a benign cyst removed from the top of my head on the first day of my spring break. Fun times.

Five For Friday 2/2/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT with a substitute therapist. He was awesome and brought a different perspective to my management. We worked a lot on proper breathing techniques.
  • 2 Days of Home Rehab. Treadmill. Bike. Scaps. Legs. Biceps.
  • I am sleeping like crap. I hate these sleep strikes, but if I have learned anything, I know they do not last forever.