>My post from yesterday is back.  Everything with Blogger seems to have been fixed.

1.  Medical Stuff:

• Abscess/Cellulitis on lip, was put on an antibiotic, and I am happy to report that it is working!

• 2 Days of PT
• 2 Days of home rehab

Having one of those days…

Trying to keep myself from falling into the “feeling sorry for myself” mode.

I’ve been really struggling the last few days with the inconsistencies of these diseases.  Someone asked me if the pain was the hardest thing to deal with.  I told them the pain was nothing compared to the roller coaster of not knowing how I will feel the next day or even the next hour.  I crave consistency and routine; two things that are pretty nonexistent for me right now with EDS and POTS. 

I realize my posts lately have been a lot of copying, pasting, and redirecting you all to other sites.  As I am trying to spread awareness for Ehlers Danlos Awareness month, I have also been battling an intense amount of fatigue, tachycardia, headaches, brain fog, neck pain, and have therefore, been honestly having some pretty emotional and frustrating days.  Thus, my posts have been pretty short recently. 

…BUT what’s my mantra?  “This too shall pass!”

I have wanted to post about my weekend since Sunday, but I knew it would be best if I waited for my body to start behaving better, so I could actually write coherently. 

1.  Medical Stuff: 

• 1 day of PT: More circuit work, more pelvic clocks, and I graduated to the full foam roller for back stabilization marches!  Woot! Woot!
• 2 days of home rehab.
• I had my tri-weekly Dr. Rosen appointment.  The quote of our session (which should be the quote for my life) was, “All you need to worry about is making today right.” ~Dr. L. Rosen.  I also followed Larry’s instructions and showed Dr. Rosen my Apollo 13 poster.  He gave me another A+, and thought it was a genius exercise for me to do.  Gotta love the team approach when it comes to my docs. 
• It’s been a week of increasing my Propranalol.  I haven’t felt a huge difference, but hopefully when I add Midodrine to the mix next week, I will feel better. 

I miss you, sunshine.  This rain is getting O-L-D.  C’mon sun, I know you want to come out and show yourself.  I would really appreciate a little Vitamin D.  I hope to see you REAL soon.