Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Sleep’

Five For Friday 1/27/17

Written by Katie. Posted in Five For Friday

What. A. Week. I have declared today a recovery day, where I move just enough so people know I’m alive.

1. Medical Stuff:

  • 1 Day of PT. A lot of work on my thoracic. By the time I got to therapy on Thursday, my mid back was NOT happy with me.
  • 1 Day of Home Rehab.
  • I napped almost every day after school this week. So needed and always a cause for celebration.

Five For Friday 1/13/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I did so much better this week. 2 Days of Home rehab and 1 day of PT. Three HARD workouts. I’m trying to get my muscles back on track, and they were definitely feeling it this week ; )
  • 1 Shrink appointment.
  • I went back to the ENT about looking at my deviated septum. I got there and they STILL did not have my CT scan from my other doc, so it was pretty much a waste of time. I called and my other doc said he will be sending it for a third time. I’m not exactly sure where the miscommunication is coming from, but I’m really, really hoping the third time is the charm.
  • Had a better sleep week. Praying it continues.

Five For Friday 12/23/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 NEEDED hour with my shrink.
  • 1 NEEDED infusion.
  • 1 PT appointment. They worked me hard! Gotta love tough love.
  • 2 Days of Home Rehab.
  • Still having some increased POTSy symptoms like more blood pooling in my feet and some sleep struggles. However, I will definitely take this week over last week. Working on resetting and recovering. Working on me.

Five For Friday 11/4/16

Written by Katie. Posted in Five For Friday

November! Time, slow down! Craziness!

Medical Stuff:

  • 1 Day of PT. For the first time in a few weeks, I had good energy, so we went with it and I worked out HARD.
  • No Home Rehab. That was a big fail this week.
  • I had an OMM appointment on Monday. In my Halloween costume which was interesting since I went from school and totally forgot to bring clothes. It was interesting to be manipulated as Snow White.
  • I had my monthly shrink appointment. Just so grateful for that man.
  • I’m still having issues with my eyes. Right now, I am experimenting with just steroid drops (rather than antibiotic steroid drops) to see if it keeps the flare away. Sighh. My body loves medical mysteries.
  • I slept a bit better this week. I am hopeful.