Happy May…which means Happy Ehlers-Danlos and Vasculitis Awareness Months!

1.  Medical Stuff:

• I traveled to Toledo, OH on Monday to see one of my POTS specialists, Dr. Bev.  More about that soon.
• I traveled to Mishawaka, IN on Thursday for prolotherapy injections. More to come on that too.
• 3 Days of Home Rehab.

I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine. 

I’ve never missed a Five For Friday.  Due to the fact that I admittedly have issues, I have to post last week’s for my own peace of mind so at least it’s documented.  Otherwise, I may lose sleep.  I know, I know…Issues, I tell you.

1.  Medical Stuff:

• 1 Day of Physical Therapy.  Lots on the Reformer!
• 2 Days of Home Rehab.
• 1 OMM Appointment for cranial-sacral therapy and an OA release on my neck.

Send tickets to sponsors.  Deposit sponsor checks.  Send ad reminders.  Constant Contact Email.  Update Foundation Website.  Link Blog to Foundation Site.  Pick up Panopolous Sponsorship on Tuesday.  Follow up on other sponsorships.  Schedule Kellogg Meeting to plan/order food & room design.  Design t-shirts and order. 

There’s a lot swirling around in this head of mine.

You should see my to-do list.  It’s pretty scary.