The 3rd annual is in the books! I will need to devote a whole post to the night…and figure out what words I can use to really express the emotions I continue to feel over the incredible generosity, love, and support we have received from so many who have embraced us and our cause. It is hard to put the grandiosity of these emotions into words, but I will try my best…I will try to get to work on that soon. I will also post Allie and my speeches.

1. Medical Stuff:

• As expected, I became pretty sick after the event. I crashed hard. I had to cancel PT and I only got in one day of home rehab. I am thankfully slowly starting to feel better. But again, I do not want to complain. It was definitely worth the crash…
• No doctors. This upcoming week, I am back at my intensive doctor and therapy schedule.
• I’m sleeping a little better now…3:30 am has been my buddy this week so hopefully I will start sleeping through the nights again. Every single symptom is better when I sleep. I’m sure many of you can relate.

2 weeks behind! Life got super crazy and I am now finally catching my breath and feeling human again…

1. Medical Stuff:

• 1 Day of PT. I needed a lot of cranial work.
• 1 Day of Home Rehab.
• VERY little sleep. At times, it was a big struggle with tears, and yucky-ness, but I made it through.

1. Medical Stuff:

• 1 Day of PT. I had a really rough weekend of rib subluxations, stomach flu, and migraines from EDS neck pain so when I arrived to therapy, I had had it. I immediately burst into tears…It’s been a while since that happened but my amazing therapist was able to calm me (and my pain) down with a stern pep talk about pacing and listening to my body, cranial therapy, and rib OMM.
• 2 Days of Home Rehab. Treadmill, balance work, and floor exercises.
• I have been trying to drink more and more water. I have been feeling so dehydrated lately which does not help my POTS issues.

Live. Love. Michigan.

A company I had not heard of until a few weeks ago, when my friend, Sara, posted a link to my Facebook wall asking if I wanted to vote. I was confused so I read further and saw that this company was asking for people to nominate their favorite Michigan non-profit for their Hold on to Hope Campaign.

I started prolotherapy treatments in 2011.  I have lost count as to how many I’ve had. I have learned along the way that prolotherapy is controversial in the world of EDS. The first EDS doctor I saw after I was diagnosed actually did not recommend it, although he admitted he did not know much about it. At that time, I was having a horrible time keeping my back and head supported without a neck or back brace. That doctor actually diagnosed me with cranial instability and sent me on my way with a referral to a spine surgeon, telling me he suspected the surgeon would determine that I needed a skull to C-3 fusion.