Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Awareness’

\”Stable:\” POTS in Toledo

Written by Katie. Posted in POTS Appointments, POTS Awareness

There’s always an air of excitement when it is time for me to return to Toledo to either see Bev or Dr. Grubb.  I think it’s because it took so long for me to get into them, knowing that they are two of the best Dysautonomia experts in the world.  Call it hope, call it an understanding, call it an appreciation for doctors who care and “get it”…call it what you will, but it never seems like a chore to travel to Toledo to see these two incredible doctors and people. 

Five For Friday 3/1/13

Written by Katie. Posted in Five For Friday

March!

1.  Medical Stuff:

  • 3 Days of Home Rehab.  Treadmill, light weights, exercises, glute fires, balance work, light stretching…the usual.
  • I had an OMM appointment.  We worked on my hip, ribs, and my doctor did some cranial-sacral work (one of my loves).
  • I had another prolotherapy treatment on Friday.  More to come on that.

The 2nd Annual Invisible Illness Benefit Concert Launch Day!

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Fundraisers, Invisible Illness, Memorable Experiences, Music, POTS Awareness, Thankful

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”