Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 1/13/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I did so much better this week. 2 Days of Home rehab and 1 day of PT. Three HARD workouts. I’m trying to get my muscles back on track, and they were definitely feeling it this week ; )
  • 1 Shrink appointment.
  • I went back to the ENT about looking at my deviated septum. I got there and they STILL did not have my CT scan from my other doc, so it was pretty much a waste of time. I called and my other doc said he will be sending it for a third time. I’m not exactly sure where the miscommunication is coming from, but I’m really, really hoping the third time is the charm.
  • Had a better sleep week. Praying it continues.

Five For Friday 1/6/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab. Ugh. Not. Enough.
  • Had to cancel PT on Tuesday because I was POTS-yyyyy and did not want to waste on of my sessions. Sigh. Hoping to get totally back on track this week. My body needs it.
  • I saw my shrink for an hour on Thursday. That hour felt like two minutes. Oof.
  • I had an OMM appointment on Friday. It had been a while because of various circumstances. Trying to figure out how to get more frequent visits in, since it is my main source of pain management.

Five For Friday 9/23/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Elliptical and bike. OMM, stim, and heat. We were trying to get my first ribs and neck to calm down. They have not been happy campers this week.
  • 1 Day of Home Rehab. Treadmill and floor strengthening. I skipped arms with light weights since I have been pretty flared.
  • I saw my primary care doc on Monday to go over my blood test results. Good news: He used the word “normal.” I’m not used to that word. 😉 He also gave me an antibiotic and steroid shot for a sinus infection that’s currently kicking my booty.
  • I also saw the ENT for the first time. I really liked him. I was referred to him to get my deviated septum checked out. From his exam, he doesn’t think it’s necessary for him to do surgery. I am going to try flonase and zyrtec combined with my singulair and advair in hopes that I begin to breathe better. Very happy I do not have surgery in the near future. Yesssss.

Five For Friday 9/2/16

Written by Katie. Posted in Five For Friday

September! And you know what that means…this girl goes back to work!

1. Medical Stuff:

  • 1 Day of PT. I worked HARD. Last PT before I have to start going from school again.
  • 2 Days of Home Rehab.
  • 1 infusion. 2 bags of fluid. I like to call it my “back to school boost.”