I have had some questions about what I do on my home rehab days.  As I have gotten stronger, I have been able to add more exercises and a few more reps.  My PT has discussed with me that less weight, and higher reps, help create energy in the tissue. 

I have learned on my own that one of the most important parts of rehabbing with EDS (for me) is making sure I work all areas of my body-arms, core, back, legs, neck…If I only work one area, the other areas start to feel like they are coming “unglued.”  I have also learned that rehab for me must remain very consistent.  Otherwise, within a few days of not rehabbing, I feel a lot more pain, and like my body is starting to fall apart.     

Well, I made it through my third prolotherapy round.  Brad is busy getting ready for conferences this week, so my Dad took me this time.  I had no idea what to expect with my Dad taking me since every time I have tried to show him the pictures from round one and two, he couldn’t look.  I’m not sure if this had to do with being queasy at the sight of all those shots, or if it had to do with one of his babies going through something painful, or both…

This would be considered a not so great EDS day…Back brace.  Check! To keep my ribs from subluxing, and to try and keep them in place.  They have been giving me real fits lately.  Cervical Collar. Check!  To keep my neck stable so the headaches and neck pain stay at bay.  And as always, my oh so cute compression stockings to help with circulation (POTS) to keep my blood from pooling. 

So today I got to therapy ready to get on the full body gym, and my PT pulled me into one of the exams room instead.  She said we were going to talk first today.  Uh oh.  She said she was watching me on Monday and was worried that I am overdoing it, and that we need to think more about pacing.  Ughhhhh, “pacing”…I have developed a strong dislike for that word ever since I was diagnosed.  She asked me how I have been doing after therapy and I was honest.  I said some days I feel great and do completely fine and other days I crash hard.  She asked me about how I was after Monday and I admitted that I went to Meijers afterwards (I was supposed to go straight home and rest), and by Tuesday morning I was throwing up and had to sleep during the day.  Busted. 

Overall, it has been a better week. I feel like I have been a rehab’n machine, which is good since my health is my job these days.

1.  Medical Stuff:

• Had 2 sessions of PT. Had to wear my new shirt to PT on Wednesday:

• Saw the GI doc at U of M on Tuesday, and was prescribed Domperidone for stomach flares.
• Saw my new PCP on Wednesday.  He was very willing to learn with me.   I think he will be a good fit.
• Saw the high risk pregnancy doctor on Thursday.  I learned quite a bit…Brad and I have a lot to think about.
• Started Florinef and the Testosterone cream. So far so good.  No chest hair yet.
• Did a lot of home rehab exercises including these…