1. Medical Stuff:

• 3 Days of Home Rehab. I upped my incline on the treadmill by two levels this week to try to get more of a burn in my legs. I know that for me, the stronger my legs are, the better I do with both, pain control and POTS sickness. I’ll be back at PT on Monday.
• I had my December Larry appointment on Tuesday, which included lots of cranial and jaw OMM. One of the residents came in to talk to me first. I could tell I was confusing the poor guy more and more, as I answered his questions. When he left the room to see if Larry was ready, I heard him say to someone, “I have never seen someone like her before. I think I need some help with this patient.” Ha! In my opinion, at least he could admit it, and asked for guidance. I think it would be better if more doctors had the courage to do so.  SIDE NOTE: I have experienced a lot of pain in my life, but jaw OMM has to be up there with the worst. Holy tears in my eyes. It is amazing though how much better I feel afterwards.

1. Medical Stuff:

• 3 Days of Home Rehab. My PT is in North Carolina so I was on my own this week.
• It was a POTSy, insomnia week. It never fails. My monthly womanly visitor=insomnia and increased POTS symptoms. Not cool. Not cool at all.
• I saw one of my OMM doctors on Friday. She did some intense cranial work which always makes me feel better. She is also really pushing for me to go gluten-free for six weeks to see how I feel. Are there any other EDS’rs or POTSies out there who have thoughts or experiences about this? My doctor believes it would be beneficial in calming my sympathetic nervous system down since I already know I have a gluten sensitivity, and with having POTS, my autonomic nervous system is already out of whack.

1. Medical Stuff:

• 1 Day of Home Rehab.  I really failed this week at finding the energy or the time to rehab. This obviously has to change.
• No PT. My “break” is almost over.
• No doctor’s appointments.
• I spent Labor Day going to Urgent Care not once, but twice, for an infected toe from a pedicure. Long story.
• Insomnia. Sigh. You all know it’s my fave (insert sarcasm here). I have to keep reminding myself that, “this too shall pass.”

Hi friends! Invisible Illness Week is fast approaching (September 9-15). I was asked to fill this out, and just before I was about to respond with, “I already did it two years ago,” I thought about it and realized a lot has changed in two years.  Therefore, some of my answers are different and some have remained the same.  I wanted to post it early, before school starts, since I am unsure how my body will respond or adjust to being back to work again.  So here you go. My 30 things.

1. Medical Stuff:

• 1 Day of PT.  Elliptical, Pilates leg springs, and neck OMM.  I also spent some time on the TRX.  I have a major love-hate relationship going with that thing.
• 2 Days of Home Rehab.
• I had my 6 month cleaning at the dentist.  No cavities!
• I battled insomnia most of the week because of POTS, which of course then, meant increased POTS symptoms. Yesterday was better so I’m hoping the cycle has been broken for now.