Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘POTS’

Five For Friday 5/20/16

Written by Katie. Posted in Five For Friday

WHAT. A. WEEK!

1. Medical Stuff:

  • I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
  • 2 Days of Home Rehab.
  • I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
  • I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

Five For Friday 2/19/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Last week was rough, rough, ROUGH. This week was much better with head, neck, and jaw pain. I still don’t feel totally “right” but I do feel like I am coming out of this bad pain spell…hopefully.
  • 1 Day of PT. Since  was in more pain than usual, we laid off some of the strengthening and I did electrical stim after my cardio instead.
  • 2 Days of Home Rehab.

Five For Friday 10/16/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I felt SO much better this week. Thank you, antibiotics!
  • 2 Days of Home Rehab. Treadmill, Recumbent Bike, and floor strengthening exercises.
  • 1 Day of PT. Elliptical, treadmill, and many foam roll exercises.
  • I saw Larry on Tuesday. My ribs were a mess, but were finally behaving once Larry worked on me…Sometimes I think my ribs really hate me : )