Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘POTS’

Five For Friday 7/3/15

Written by Katie. Posted in Five For Friday

Summer, please slow down! July?! How is that possible!

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • My ribs still hate me. I need to get back in for more OMM.
  • When my ribs flare, my gastroparesis flares. Happens every time. If there is ever a research project done on us, sign me up.

Five For Friday 3/13/15

Written by Katie. Posted in Five For Friday

I stayed home from school yesterday…to rest. My body has been telling me in more ways than one that it needed some recovery time…and I listened. Maybe I am getting a bit wiser in my older age : )

1. Medical Stuff:

  • I saw my Pulmonologist on Monday. I love when I hear the word “normal” from a doctor. My breathing tests were all NORMAL.
  • I saw Larry on Tuesday for more OMM; ribs, cranial, and TMJ.
  • 2 Days of Home Rehab.
  • I got my glasses back for the third time. It’s true! The third time IS the charm! They do not make me sick. Yesssss.
  • Going on my third straight week of my left eye twitching. I’m trying not to worry. But I’m Katie…I’ve named it Henry. I hope Henry goes away really, really soon.

Five For Friday 2/27/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • I picked up my new glasses. Bad news…they are still making me sick. What the heck?! I have never had this problem before. I will be making a call on Monday.
  • I had my 6 month dental cleaning. 33 and still no cavities!
  • I went to U of M on Tuesday to see my GI doc who specializes in Gastroparesis. I am managing fairly well, so he rewrote my Domperidone script (I only take it for flares), and we discussed going Gluten Free for a month to see how I feel. He busted out laughing when I blurted, “BUT I’M ITALIAN.” We talked about how it really is not that daunting, and we both came to the conclusion that it would be worth a month of trying.
  • Stupid, stupid, POTS induced insomnia. I don’t have time for no sleep!

Just Another Curveball

Written by Katie. Posted in Challenges, Chronic Illness, POTS Awareness

It’s no secret that I have been struggling with the ups and downs of POTS the last few months. More so than I have in a long time.

I’ve received a lot of questions, phone calls, emails, and concern from my amazing loved ones, so I thought it would be a good time to put a blog post out there. Plus, I miss writing.  It’s a wonderful way to communicate, help others understand, and to spread awareness which I believe in with all of my heart. Plus, it is simply a cathartic thing for me.

Five For Friday 11/14/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab. That’s it. It was a pretty bumpy week with POTS.
  • I saw my gynecologist on Friday for my yearly. He doesn’t think my hormones are a major player in my increase in POTS symptoms right now. I know it may be weird to say, but I heart my gyno. He definitely cares about the whole person. That means a lot when you’ve seen many doctors.
  • I have a full week of appointments ahead: Larry, Psych, Dr. Grubb in Toledo. Hoping to get to the bottom of some of the issues I am having so I can get back to feeling my “normal.”