Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Struggles’

Good Times Around the Bend

Written by Katie. Posted in Challenges

Many people often comment on how positive I am.  I do pride myself on the fact that I usually can find a silver lining in hard situations, and I don’t take myself too seriously.

But tonight I am struggling. 

Not because I had a bad day, or a bad POTS appointment.  In fact, I saw Dr. Grubb today, and my appointment went well, and I have to say that Dr. Grubb truly is an incredible man. 

But sometimes life smacks you in the face and it is overwhelming. And exhausting. And you feel vulnerable and defeated.

Five For Friday 6/24/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • I love finding EDS and POTS success stories.  Here is a link to one of the latest uplifting stories I found…
  • Dentist appointment.  No cavities but I am too switch from using regular floss to using the floss picks so I am able to hold them with one hand.  I showed my dentist how I flossed with my hand that doesn’t have feeling and he suggested I switch to the picks so I can use my right hand only.
  • 3 days of Home Rehab.
  • 1 Day of PT.  On Thursday, I started using this….
A Pilates Reformer to help strengthen my core and prevent me from being so quad dominant.  It is my new torture chamber.  (Just joking, Katie!)  We do have a love-hate relationship so far though.  In all seriousness, I am always so thankful that Katie constantly tries to find new ways to challenge me and help me get stronger.

"I Sing. I Dream. I Love…Anyway."

Written by Katie. Posted in Challenges

Having one of those days…

Trying to keep myself from falling into the “feeling sorry for myself” mode.

I’ve been really struggling the last few days with the inconsistencies of these diseases.  Someone asked me if the pain was the hardest thing to deal with.  I told them the pain was nothing compared to the roller coaster of not knowing how I will feel the next day or even the next hour.  I crave consistency and routine; two things that are pretty nonexistent for me right now with EDS and POTS. 

Wake Up Call

Written by Katie. Posted in Challenges, Favorites, Music

Sometimes you need a wake up call.  Usually I try not to whine about the little things that get me down about EDS and POTS, but yesterday I failed at this. Big time.

It was 84 degrees and sunny yesterday.  In all other years I would have been ecstatic about this weather; especially on April 10th.  I would have broken out my Reef flip flops and capris, and spent as much time as I could outside reading, relaxing, and soaking up some rays.  I would have also probably have gone and gotten my first pedicure of the season. 

But not yesterday.  I whined and complained all day.  I even got on MY nerves after a while.