Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Weather’

Five For Friday 2/26/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I started more scap firing exercises, plus cardio, plus OMM!
  • 1 Day of Home Rehab. Treadmill at a high incline, light weights, light stretching.
  • I was supposed to go back to Mishawaka on Thursday to see the new doc I was referred to for head, neck, and jaw pain. Well, with the snow storm that hit us, that did not happen. I am now supposed to go March 11. Fingers crossed.
  • POTS insomnia has hit! Gah. It is one of the worst things in my opinion about POTS. I know enough now that it is a matter of riding it out…

Five For Friday 11/6/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. A fellow zebra has begun therapy where I go, and I had the chance to speak to her Mom on Tuesday. It is amazing thing when you experience the fact that listening can be the greatest gift of all.
  • 2 Days of Home Rehab.   It was one of those weeks where there was some major self-talk needed. But in the end, I knew it has to be non-negotiable…so I got off my booty and put one foot in front of the other.
  • I saw Dr. Rosen, my shrink on Thursday. I had an ah-ha. And tears. and then a weight lifted. Taking care of your mental well being is so important, friends. I cannot say it enough.
  • I napped two days this week! Woot!

Five For Friday 6/19/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab.
  • This was a struggle week with my ribs and pain. I got into the doctor as an “emergency” on Friday because I was in so much pain from my ribs being subluxed. After a lot of manipulation, 4 trigger point injections, ear acupuncture, and having to do a colon cleanse because my gastroparesis had flared, it was decided it was best I rest for the weekend. This meant no Life as a Zebra Foundation, “Team Zebra” 5k the next day…I cried and then moved on into acceptance mode. I knew in my heart that this was an instance when I needed to listen to the docs who were trying to help me!

Five For Friday 3/6/15

Written by Katie. Posted in Five For Friday

Whew! What a week! If I’m being honest, I do not think I’ve been this happy to see a Friday in a long time. I don’t think I’ve had this many tears in a long time.

BUT, if I were to find a positive in all of it, it is that I made it. And I’m smiling, and the sun is out, and I have two legs, and my family and friends are the best, and I have a job that I love, and I have medical insurance, and, and, and…Perspective, my friends. Sometimes I forget.

1. Medical Stuff:

  • 1 Day of PT. Lots of cranial work. Lots.
  • 2 Days of Home Rehab.
  • My echo-cardiogram was normal! Thankful!
  • My glasses saga continues. I took my glasses back to the eye doc. Long story short, they are getting made for a third time.
  •  I saw my shrink on Thursday. Fabulous timing.
  • A week of POTSy insomnia.  I keep repeating my mantra; it will pass…it WILL pass.
  • Day 9 of my left eye twitching. I told my Mom I think it’s Ebola. She laughed at me.

Five For Friday 2/20/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I went in the morning since we had the day off for President’s Day. All I have to say is morning PT is a lot easier for me than afternoon PT.
  • 2 Days of Home Rehab.
  • I went back to the eye doctor for a prescription check since my new reading glasses have been making me sick. Right away, my doc said it was different. I remember my first appointment when I got the initial prescription. I was having a really sick POTSy day and I was barely sleeping. I am willing to bet that that had something to do with it.