1. Medical Stuff:

• 1 Day of PT with a substitute therapist. He was awesome and brought a different perspective to my management. We worked a lot on proper breathing techniques.
• 2 Days of Home Rehab. Treadmill. Bike. Scaps. Legs. Biceps.
• I am sleeping like crap. I hate these sleep strikes, but if I have learned anything, I know they do not last forever.

It’s been a LONG, ROUGH week. I don’t have much energy for this today, so short and sweet it is!

1. Medical Stuff:

• I saw my shrink on Thursday. NEEDED.
• I had PT on Tuesday. I love that I have a couple of other friends at PT on Tuesdays when I go. We have our own little club. It’s the cutest.
• 1 Day of Home Rehab.
• I had the stomach “flu” on Monday. On MLK Day which was our day off. It was exactly 24 hours and zero fun.

Happy New Year, friends and family!

1. Medical Stuff:

• Still on my PT hiatus for three more days!
• I had prolotherapy today! The last time I went was February. This blows my mind because when I first started going in 2011, I had to have treatments every six weeks. That’s some major progress. Today, we did my neck, jaw, thoracic, and SI Joints. Definitely worth the trip to Indiana.
• Three Days of Home Rehab. Tuesday marked my first workout of 2018 and it wasn’t pretty but I made it. I tried being a “normal” person the last two weeks, by eating my way through Christmas and New Year, not working out, and lazing around with family and friends.  Well, that was dumb. LIKE REALLY DUMB.

  Defective collagen is no joke, and I am not stronger than it. I tried to show it who was boss, but my body showed me who was boss right back. My family kept telling me to wear my neck brace yesterday, and I kept stubbornly refusing while holding my head up with my hand.

  I remember the day I was diagnosed with EDS by my specialist, who also has EDS himself, and he told me that I’ll find out pretty quickly how many days I can go without being active before I feel like my body is coming unglued. For him, it was three days.

  Well, he was right. For me, it is FOUR. After four, I started feeling weaker, and having more symptoms. By last night (14 days later), I was in tears, and was really, REALLY mad at myself.

  Today, I decided that the anger was no longer productive, and I begrudgingly strapped on that neck brace and put in an hour of cardio and strengthening…And guess what? I immediately started functioning better after my workout.

  So once again, my body showed me I am not a “normal” person. I work out to stand up, function, and ultimately live. And the more I work with my body like it’s my best friend, rather than try to show it up, I will be better off. So no, I’m not normal. I’m a defective zebra…But a badass zebra at that.

  2. My brother had an imaginary friend as a kid named Herkey Morocco. Now his best friend is a reality. Ladies and gents, meet Senor Herkey Morocco Dama, my new beautiful nephew. That makes two dog nephews and seven human nieces. I’m a lucky aunt. #adoptdontshop

1. Medical Stuff:

• 1 Day of PT. Alternated the elliptical with the recumbent bike to get to 40 minutes of cardio. After cardio, scap strengthening and balance training. I ended with OMM on my neck, jaw, and upper ribs.
• I had an OMM appointment today. Because my jaw, neck and rib pain is still sticking around, we tried OMM with trigger point injections. The hope is the injections will interrupt the pain cycle. Fingers crossed.

Friday the 13th!

1. Medical Stuff:

• 1 Day of PT. A lot of rib OMM and cranial work after cardio and strengthening.
• I’ve been doing various Beachbody exercise programs and I like the variety. I am figuring out how to modify as I go. So far, I have done 21 Day Fix Cardio, 21 Day Fix Pilates, and PiYO Sweat.
• 3 Days of Home Rehab.
• I had a procedure done yesterday where I had to be put under. It went well. I am just SORE today, but will be back in action soon. Meanwhile I am getting in some good sleep and a lot of one-on-one time with my heating pad. HOT.