Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Infusions’

Five For Friday 9/15/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 after school Infusion on Wednesday to get through the rest of the week.
  • 3 HARD home workouts.
  • Brad and I walked two nights this week instead of one. Progress.
  • On some new meds right now that are making me a bit “curvier.” Kinda sucks but we do what we gotta do, right? Hoping it’s temporary.

Five For Friday 9/8/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • I had two doctor’s appointments scheduled, but ended up canceling. My body needed me to clear my schedule to get used to school, and I am so glad that I did. I’m making a mental note about this for next September.
  • One Labor Day Infusion. I spent my infusion writing! See below!
  • My body is struggling. That is just honest…and normal. September is my hardest month as I adjust back to school. So if you don’t hear from me much, you know why.

Five For Friday 4/7/17

Written by Katie. Posted in Five For Friday

April! Already one week in! Howwwwwwwwwwwww?

1. Medical Stuff:

  • No PT. My PT is in Mexico.
  • 3 HARD Home Rehab workouts. Trying to tone more; especially my back, thighs, and core.
  • Had my bi-annual echo to make sure all is good with my heart. EDS can affect anything so it’s important I get an echo every couple of years. I will get the report in a week. Oh yea, the hospital had a code red while I was there. Never dull.
  • I had an infusion Wednesday night. I made the most of it with trashy TV, warm blankets, and fun nurses to chat with.
  • I saw my shrink on Thursday. Are you gathering how sexy my spring break has been? ; )

Five For Friday 1/20/17

Written by Katie. Posted in Five For Friday

This was definitely a full week of appointments! Whew.

1. Medical Stuff:

  • 1 Day of PT. We did some planning on how we are going to change up my workout a bit to get different kinds of strengthening and stabilization in.
  • 2 Days of Home Rehab.
  • 1 visit to urgent care for “normal people” sickness : )
  • 1 Infusion.
  • I had an OMM appointment on Thursday for cranial work.
  • I saw my shrink after my OMM appointment. Physical and Mental health in one afternoon…The best!

Five For Friday 12/23/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 NEEDED hour with my shrink.
  • 1 NEEDED infusion.
  • 1 PT appointment. They worked me hard! Gotta love tough love.
  • 2 Days of Home Rehab.
  • Still having some increased POTSy symptoms like more blood pooling in my feet and some sleep struggles. However, I will definitely take this week over last week. Working on resetting and recovering. Working on me.