I’m back! Since I was on vacation all week, this will have to be the vacation edition of Five For Friday.

1.  Medical Stuff:

My PT gave me permission to “just relax and enjoy the week” since I was on vacation.  However, I did do one day of rehab at the beach house, which I quickly figured out was not enough.  After 5 days of no rehab, I began to feel like my joints were coming unglued again.  It is amazing how fast my joints start to go downhill, without doing any strengthening.  At one point, I picked CeCe Baby up, and my shoulder popped out of socket.  Thankfully, my Mom was there to catch her.  Good to know, but also a big reality check that rehab will forever be a part of my life to maintain function.  Needless to say, I will be back at it hardcore tomorrow…

1.  Medical Stuff:

• I love finding EDS and POTS success stories.  Here is a link to one of the latest uplifting stories I found…

• Dentist appointment.  No cavities but I am too switch from using regular floss to using the floss picks so I am able to hold them with one hand.  I showed my dentist how I flossed with my hand that doesn’t have feeling and he suggested I switch to the picks so I can use my right hand only.
• 3 days of Home Rehab.
• 1 Day of PT.  On Thursday, I started using this….

Where has this week gone?  Better yet, where has May gone?  I was just looking through my last couple posts, and realized last Thursday’s was not the happiest of posts.  And since, I am lacking the energy to blog about the other topics I want to blog about, I decided to recap my day; which happens to be a tad bit more uplifting than last week.

First of all, I did not get sick on any exercise equipment.  That in itself is a small victory. 

Having one of those days…

Trying to keep myself from falling into the “feeling sorry for myself” mode.

I’ve been really struggling the last few days with the inconsistencies of these diseases.  Someone asked me if the pain was the hardest thing to deal with.  I told them the pain was nothing compared to the roller coaster of not knowing how I will feel the next day or even the next hour.  I crave consistency and routine; two things that are pretty nonexistent for me right now with EDS and POTS. 

1.  Medical Stuff:  Pretty quiet week on the medical front…

• 2 days of PT.  One that went really well, and one that was more of a psych-therapy appointment.  My PT and I discussed how breakdowns every once in a while are healthy and go with the territory.  Everyday I have been trying to focus on my Dr. Rosen homework:  “Making today right, because that is all I can control.”  Some days are easier than others.
• 2 days of home rehab.  
• Felt pretty sick Monday and Tuesday.  Today is the strongest I have felt all week.  I am thankful for that.