Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Struggles’

Five For Friday 3/7/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT.
  • 2 Days of Home Rehab.
  • Zero doctors. Two weeks in a row. Whoa.
  • I ended up taking Wednesday off. This was a down to the minute decision but after paying attention to my body’s “red flags” (more blood pooling, lots of fatigue, some throwing up, wacky heart rates and blood pressure) I decided it was best to give myself a rest and recovery day. I’m always a work in progress when it comes to listening to my body. Trying to get better…

Five For Friday 1/17/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  •  1 Day of PT. I have new ab and shoulder work to add to my other exercises. It’s good to change it up every once in a while.
  • 1 Day of Home Rehab.
  • I was back to having a lot of POTS and insomnia problems. To be honest, it was a really rough week, with a few bad nights. It may be time to look at a couple of med changes.
  • I saw Larry on Monday for my monthly appointment. He used his “magic fingers” to do cranial and upper back OMM. That man has an amazing gift.

Five For Friday 9/13/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab/Strengthening/Lifting.  This is a huge improvement over last week.
  • I saw my OMM doctor on Thursday.  I had a fever which is weird because I wasn’t feeling terrible.  It was also one of those appointments when the nurse took my blood pressure, stopped, looked at me with concern and said, “I’m not sure how you are still talking to me with a blood pressure this low.” That was my cue to down some soy sauce and lie down.  Once, I saw the doctor, she worked from my pelvis to my neck.  Let me just say that for someone so hypermobile, it’s pretty crazy how stuck my OA joints (neck) get.

Five For Friday 9/6/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab.  I really failed this week at finding the energy or the time to rehab. This obviously has to change.
  • No PT. My “break” is almost over.
  • No doctor’s appointments.
  • I spent Labor Day going to Urgent Care not once, but twice, for an infected toe from a pedicure. Long story.
  • Insomnia. Sigh. You all know it’s my fave (insert sarcasm here). I have to keep reminding myself that, “this too shall pass.”