Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Surprises’

Five For Friday 3/25/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • Prolotherapy round 3 was Monday.
  • 2 Days of Home Rehab.
  • 1 Day of PT
  • It is official~I will be seeing Dr. Grubb’s NP for POTS on April 20th.  I received the packet this week.
  • I am loving my new compression stockings.
  • Pelvic clocks, glute retraining, scapular exercises, and the recumbent bike are my new BFFs.

Five For Friday 3/18/11

Written by Katie. Posted in Five For Friday

 

1.  Medical Stuff:
  • 2 Days of PT-Did regular circuit strengthening.  My PT also put new foot lifts in my shoes to give me better support. 
  • 2 Days of Home Rehab.
  • I got into Dr. Grubb’s Nurse Practitioner!  I had sent my info into their office in December and they called me Tuesday to schedule an appointment.  My appointment is in Toledo on April 20th, to get another expert’s opinion on POTS and my treatment.  It takes a year or more to get into Dr. Grubb himself so I jumped at the chance to see the NP since I was told they work very closely together.  I was also told to expect at least 2 hours for my appointment because she will go over EVERYTHING.  At a couple of my EDS appointments in the past year, I was told that Dr. Grubb probably has the best understanding about how POTS plays into EDS so that is promising to me.
  • My ribs hurt!  It’s been pretty frustrating.  I go back Monday to get my third round of prolotherapy (I cannot believe it’s already been 3 weeks!) so I will definitely be bringing up my ribs because they are worrying me!
  • I had to go to Sparrow Medical Supply to get a new pair of compression stockings since one of my stockings ripped in half when I was taking it off.  ?Oops.
RIP my first pair of compression stockings.  You were good to me.

Five For Friday 2/18/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 sessions of PT-2 strengthening and 1 soft tissue
  • 2 days of home rehab
  • Used my topical pain cream for the first time.  It did help take some of my back and neck pain away.  I love that it’s not another pill I have to take.
  • Had the Rest and Recovery Talk.
  • Had an hour session with Dr. Rosen.  He definitely helps me get my head on straight.

Five For Friday 1/28/11

Written by Katie. Posted in Five For Friday

Overall, it has been a better week. I feel like I have been a rehab’n machine, which is good since my health is my job these days.

1.  Medical Stuff:

  • Had 2 sessions of PT. Had to wear my new shirt to PT on Wednesday:
  • Saw the GI doc at U of M on Tuesday, and was prescribed Domperidone for stomach flares.
  • Saw my new PCP on Wednesday.  He was very willing to learn with me.   I think he will be a good fit.
  • Saw the high risk pregnancy doctor on Thursday.  I learned quite a bit…Brad and I have a lot to think about.
  • Started Florinef and the Testosterone cream. So far so good.  No chest hair yet.
  • Did a lot of home rehab exercises including these…
 I have such a love-HATE relationship with these superwoman’s.
I feel like such a weakling but I gotta keep at it…Plus I’m taking Testosterone 🙂